United States of America: Introduction of privacy law concerning genetic data
Description
Introduction of privacy law concerning genetic data
Senate Bill 227 is introduced, aiming to protect privacy regarding genetic data provided by users to a genetic testing company. Among other measures, companies must disclose the purposes for which user data is used and provide the user with a right to delete said data and destroy the samples from which they originate.
Original sourceScope
Policy Area
Data governance
Policy Instrument
Data protection regulation
Regulated Economic Activity
other service provider
Implementation Level
subnational
Government Branch
legislature
Government Body
parliament
Complete timeline of this policy change
Hide details
2021-02-23
under deliberation
2021-03-17
adopted
Key regulatory dimensions
Regulated subjects
The businesses, government agencies or individuals affected by this policy or regulatory change.
producer / supplier
1
Type
Private organisation
Economic activity
other service provider
Category
All
Policy change by business practice
The detailed activities within the scope of this policy or regulatory change.
personal data (all forms): storage (any form)
Regulatory tool
User consent: Other requirement
User right to deletion of personal data
User right to access personal data
Sanctions
Regulated subjects
1
personal data (all forms): transmission
Regulatory tool
User consent: Other requirement
User right to deletion of personal data
User right to access personal data
Sanctions
Regulated subjects
1