United States of America: Implementation of California Genetic Information Privacy Act
Description
Implementation of California Genetic Information Privacy Act
The Genetic Information Privacy Act (SB 41) is implemented on 1 January 2022. The act requires companies that provide direct-to-consumer genetic testing to inform consumers about the company’s policies and procedures regarding the collection, use, m…
Scope
Policy Area
Data governance
Policy Instrument
Data protection regulation
Regulated Economic Activity
other service provider
Implementation Level
subnational
Government Branch
legislature
Government Body
parliament
Complete timeline of this policy change
Hide details
2021-09-09
adopted
2021-10-06
in grace period
Key regulatory dimensions
Regulated subjects
The businesses, government agencies or individuals affected by this policy or regulatory change.
producer / supplier
1
Type
Private organisation
Economic activity
other service provider
Category
All
Policy change by business practice
The detailed activities within the scope of this policy or regulatory change.
personal data: genetic: data collection
Regulatory tool
Obligation to make customer data available to government agencies
User consent: Opt-in requirement
User right to deletion of personal data
Sanctions
Fine
Regulated subjects
1
personal data: genetic: storage (any form)
Regulatory tool
Obligation to make customer data available to government agencies
User consent: Opt-in requirement
User right to deletion of personal data
Sanctions
Fine
Regulated subjects
1
personal data: genetic: data processing
Regulatory tool
Obligation to make customer data available to government agencies
User consent: Opt-in requirement
User right to deletion of personal data
Sanctions
Fine
Regulated subjects
1